A team at the University of California, San Diego has received funding from the University and the Robert Wood Johnson Foundation to create a web-based resource that will help scientists and Institutional Review Boards (IRBs) design and conduct ethically sound research involving personal health data collected from sensors, social media and mobile devices.
The CORE project, launched by the University of California-San Diego, will establish an ethical framework for the use of digital tools and platforms in research
A University of California, San Diego, research team hopes to craft ethical best practices for research studies involving participants’ personal data, including confidential healthcare information.
Camille Nebeker, assistant professor of Family Medicine and Public Health at the University of California San Diego, will lead an effort to investigate whether federal regulations to protect human research participants are responsive to new forms of population health research, particularly studies that incorporate emerging technologies such as passive wearable sensors.
As an aging population seeks improved health care, the costs of providing it keep rising. Meanwhile, promising research findings may remain stuck in the lab for years, helping no one.
Research Ethics in the Digital Age, an MD2K webinar with Camille Nebeker, Ed.D., M.S., of the University of California-San Diego took place on Thursday, January 26, 2017 at 2pm.
Inspiring research talks by J. Craig Venter and five translational scientists supported by the Altman Clinical and Translational Research Institute (ACTRI) marked the ACTRI Day of Translational Science on January 18. The afternoon event at the ACTRI building drew more than 100 UC San Diego researchers and concluded with a reception and poster session featuring research trainees from the ACTRI TL1 program. ACTRI clinic, community engagement, education and laboratory staff were also on hand at the reception to discuss resources available to researchers.
Navigating Ethics in the Digital Age: Introducing Connected and Open Research Ethics (CORE), a Tool for Researchers and Institutional Review Boards
The article entitled “Navigating Ethics in the Digital Age: Introducing Connected and Open Research Ethics (CORE), a Tool for Researchers and Institutional Review Boards” written by Camille Nebeker, MS, EdD and John Tourous, MD was published in the Journal of Medical Internet Research. The article provides an overview of the CORE initiative and includes a call to action for readers to join the CORE Network to contribute to the larger conversation about ethics in the digital age.